Wednesday, March 24, 2010

Tyson's neurologist appointment

The day after we got back from Florida Tyson had to go to Bangor to see the neurologist. We had been waiting for this appointment for over three months and were happy to finally get in. After asking the same list of questions as our pediatrician and a quick Nero exam, she decided that it was time to take him off the Cypro and put him on a new medication to try and manage his headaches better. She told us that the new medication can cause heart arrhythmia's so he would have to have an EKG and blood work to make sure there were no underlying heart conditions. After talking to us about some of the causes of childhood migraines she also ordered an EEG to test for seizures, there is a type of epilepsy that presents only as headaches instead of the normal tremors. She also ordered a sleep study to see if he is having any apnea spells that leave him unrested during the day. Because we were already in Bangor we decided to go ahead and have his blood work and EKG done that afternoon. Although the blood work did not go so well, mostly because the nurse missed his veins and had to poke him in both arms, but the EKG went wonderfully. Getting his EKG

This past month has been spent slowly weening him off of the cypro in preparations of the EEG and other tests. Once we get the results from those we may or may not start him on the amitriptyline. I am not thrilled with the idea of giving him an antidepressant, but I have been told by both the neurologist and his pediatrician that in low doses it can be an effective treatment for migraines. His EEG has been scheduled for April 8th and his sleep study for late May so hopefully we will have more answers soon. Until then we are trying to control his pain with Tyenol, Ibuprofen and Immatrex. I just wish we could finally treat the problem instead of the symptom. The idea of keeping him medicated until he grows out of them, sometime in his 20s, does not thrill me. I want him to be able to live without side effects from something that is suppose to be helping. While I am grateful that we are not dealing with a more serious illness, I still hate seeing him in pain.

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